A film about rare disease and the parents who are going to the ends of the earth to create hope where none existed. Follow the bold adventures of a father climbing mountains for his dying boys, a woman running marathons blindfold in honor of her sister, and a father biking solo across the country and back to raise awareness for the disease that stole his 1 year old son.

Private Debut: 10/2/18 at Global Genes Patient Advocacy Summit, Irvine, CA

We’re currently coordinating screening dates for the first half of 2019. We anticipate public screenings in the following cities:

  • Wilmington, DE
  • New York City, NY
  • Charlotte, NC
  • Los Angeles, CA
  • Washington, DC
  • San Diego, CA
  • San Francisco, CA
  • Chicago, IL
  • Cleveland, OH
  • Naples, FL
  • Dallas, TX

To learn more about hosting a screening, explore our host a screening page.