A film about rare disease and the heroes going to the ends of the earth to create hope where none existed. Follow the bold adventures of a father climbing mountains for his dying boys, a woman running marathons blindfold in honor of her sister, and a father biking solo across the country and back to raise awareness for the disease that stole his 1 year old son.

Private Debut: 10/2/18 at Global Genes Patient Advocacy Summit, Irvine, CA

Private Screening: 11/2/19 – Charlotte, NC

Private Screening: 3/15/19 – Chan Zuckerberg Initiative – Santa Cruz, CA

Public Screening: 3/31/19 – Naples, FL – TICKETS HERE

Private Screening: 5/3/19 – Global Genes @ OC Marathon – Orange County, CA

5/16/19 – Ally Financial Disabilities Awareness Day – Charlotte, NC

More screenings TBA here

We are considering a US and UK release on Amazon Prime Video late 2019.

To learn more about hosting a screening, explore our host a screening page.

“No matter how bad you feel, no matter how low you are, you still have to fight. You’ve gotta pick yourself up and you gotta fight.”

– Carl Kapes, father of two boys with Sanfilippo syndrome, Ryan (14) + Braden (11).
Life expectancy for children with Sanfilippo is < 18 years.


Dan Salvo

Dan Salvo





Carl Kapes

Carl Kapes

Father of Ryan + Brayden